Extreme Heat & MS

As we’re soon to be hitting the near 100s this upcoming week on the East Coast; I felt this would be the time to discuss heat and multiple sclerosis.

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“Studies report that about 60 to 80% of people diagnosed with MS show excessive sensitivity to heat. People with this neurological disorder experience a temporary exacerbation of their existing symptoms and also new disturbing symptoms when they are exposed to elevated temperatures. They are sensitive to even a slight increase in their core body temperature (0.25°C to 0.5°C) that may be due to physical exercise or a warmer environment.”. (Wlassoff, 2014).

What happens when exposed to extreme temperatures:

  • Fatigue is a common symptom and it is seen in nearly 70% of people with MS. Premature fatigue occurs in people with MS when they are exposed to even a slight increase in temperature. Weakness, especially affecting the limbs is also a symptom that is perceived during or aggravated by a temperature rise.
  • Central pain is another common symptom that worsens with an increase in temperature. Studies propose that the reason behind this may be the damage caused to the thalamus and the spinothalamic-cortical pathways leading to thermoregulatory dysfunction. Numbness is another symptom that worsens with rising core body temperature.
  • Cognitive functions in MS patients are also sensitive to heat. Memory problems, judgment difficulties, concentration difficulties and problems with other cognitive skills like language comprehension are more pronounced with the increase in body temperature. A recent study pointed out that people with MS demonstrated worsening of cognitive functions in warmer days.

 

Resource:

Wlassoff, V., PhD. (2014, September 13). How Temperature Affects People With Multiple Sclerosis. Retrieved June 10, 2016, from http://brainblogger.com/2014/09/13/how-temperature-affects-people-with-multiple-sclerosis/

 

 

The World of Me…

I haven’t updated this in awhile because the heat has had me down and out. Of course, my migraines are back in full force. It seems like there is no relief for me in the migraine situation. Well, my neuro did suggest Botox injections. It sounds silly to get Botox for a migraine. I’m sorry, it does. I’ll hope that something helps soon. These crippling migraines are a little too much right now.

I’m in the middle of my employment situation. My previous job I left a week ago, well, they were well informed that I had MS. They said they were cool with it. Anyway, they could help me, they would. Of course, I’m going to point out when I think it’s a tad bit warmer than it should be in the building. I can’t control my body temperature. They knew this. As an assistant manager quit the week before, I walk into work and it is blazing. Someone has the thermostat way high. I felt sick. I felt dizzy. I couldn’t handle it. I simply thought I was going to die. When I asked for the heat to be turned down, no one ever touched it. I suffered for almost three hours before the other person I was working with noticed I was sluggish and turned the AC on. Needless to say, I quit two days later. Right now, I’m enjoying some down time. Kinda. The migraines.

Today, we finally laid my uncle to rest. His ashes to rest. I still feel empty about this. 5 months later, I don’t know how to … feel. Empty seems appropriate. 13310633_10153129529159364_4889025942678562647_n13339483_10153129529094364_5536415203061480594_n (1)13335555_10153129528984364_324781674203741895_n13315273_10153129529269364_3328635463381753577_n

After this…I came home to find out a friend I met while volunteering at The Salvation Army passed away from his heart condition today. He was 23. Due to get married in 2 weeks and was going to be put on the heart transplant list in 17 days.

It is another reminder that life is short.

Cherish everything.

Tomorrow isn’t promised.

Copaxone: Day 2

Day 2 was different. Very different.

I changed the injection site from my arm into my leg. Not sure if that was such a great idea. What I mean is, what was pennies and tasting them for two hours quickly became feeling like I was being stung by 5000 bees.

By being a person who reacts badly to this type of thing, I decided not take the injection in my leg again. As I said, this is not a good idea. Period.

However, this morning, I woke up with a sinus infection/head cold. As someone who got tired of having a never ending cycle of colds/stomach flu in the winter, I turned and got the flu shot.

What a help that turned out to be.

As for the Copaxone- maybe it’s working- I can’t tell much of a difference at this point.

PS: Who turned off the 80 degree weather???