The Fay Farms Rejuvenation Review

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.”

As someone who suffers from Relapse-Remitting Multiple Sclerosis (RRMS), like most people, I am often looking for ways outside of medication to end my pain.  Whether it be Epsom salts or lavender baths; or muscle cream- I am always trying something. Living with MS, I know reading this, you think you have tried everything out there, believe me, I am the same way. At one point, I was approached to try Botox injections in my legs.

One day, I got an email asking if I would like to try The Fay Farms “Rejuvenation” Lotion and I thought to myself “like this is going to be any better than any of the others.” Let’s be honest here: what would you think if someone wanted you to try an organic lotion for your aches and pains? Would you actually believe that it was going to help after all of the non-success of the other attempts? I have suffered from RRMS for 10 years and quite honestly, I didn’t believe that I was the right candidate for this particular lotion.

The Rejuvenation Lotion contains CBD oil. And not to turn my post into a chemistry lesson that I’d probably confuse you and myself on: CBD oil is one of the cannabidiol oils that are in medical marijuana. This is one of the items that relieves pain but does not give you the high like marijuana. That would be THC.

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When I first received this lotion; the first thing I noticed was the familiar smell of black licorice. I’m not a big fan of the candy, however, found this smell very calming and soothing.  For 8 oz, you get a fair amount for $20; my favorite aspect of the bottle is the pump top. This makes it easier to use and easier to keep clean as well.  On the bottle, it says it is for “deep muscle and joint relief”. I have gotten into the habit of using this after a shower and after yoga or ballet. And to be honest, I haven’t used it that long, so I don’t know if it is making an impact on my muscles yet; however, I do know it does relax me after using it.

I do know that after using it for the past couple of weeks; I will be using the other products listed on the site in the near future. I know not everyone feels easy and ok with using items with CBD oils in it; I can tell you, by word of mouth I have interested others in buying it.

Hopefully, my review can interest you, the reader, into doing the same.

Go have a look at http://thefayfarm.com/p/cbd

You can also find The Fay Farm on Facebook https://www.facebook.com/TheFayFarm
and on Twitter. Twitter.com/thefayfarm

You can also find me here and on Twitter at @TheMSLife

 

 

Uncomfortable Pain

I haven’t blogged for awhile. Minus the post from a few days ago.

My MS is keeping me homebound; 91% of the time. Since Monday my left leg has turned into what feels like a block of cement. I’m pretty much in a slight state of depression over this. I walk and feel nothing but pain. I want to cry, but I can’t. I’m dragging around my leg and I know people are looking at me, so why go outdoors? Why face the stares?

I have to. Because I do need to make a living while I still can.

Sigh.

Extreme Heat & MS

As we’re soon to be hitting the near 100s this upcoming week on the East Coast; I felt this would be the time to discuss heat and multiple sclerosis.

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“Studies report that about 60 to 80% of people diagnosed with MS show excessive sensitivity to heat. People with this neurological disorder experience a temporary exacerbation of their existing symptoms and also new disturbing symptoms when they are exposed to elevated temperatures. They are sensitive to even a slight increase in their core body temperature (0.25°C to 0.5°C) that may be due to physical exercise or a warmer environment.”. (Wlassoff, 2014).

What happens when exposed to extreme temperatures:

  • Fatigue is a common symptom and it is seen in nearly 70% of people with MS. Premature fatigue occurs in people with MS when they are exposed to even a slight increase in temperature. Weakness, especially affecting the limbs is also a symptom that is perceived during or aggravated by a temperature rise.
  • Central pain is another common symptom that worsens with an increase in temperature. Studies propose that the reason behind this may be the damage caused to the thalamus and the spinothalamic-cortical pathways leading to thermoregulatory dysfunction. Numbness is another symptom that worsens with rising core body temperature.
  • Cognitive functions in MS patients are also sensitive to heat. Memory problems, judgment difficulties, concentration difficulties and problems with other cognitive skills like language comprehension are more pronounced with the increase in body temperature. A recent study pointed out that people with MS demonstrated worsening of cognitive functions in warmer days.

 

Resource:

Wlassoff, V., PhD. (2014, September 13). How Temperature Affects People With Multiple Sclerosis. Retrieved June 10, 2016, from http://brainblogger.com/2014/09/13/how-temperature-affects-people-with-multiple-sclerosis/

 

 

The World of Me…

I haven’t updated this in awhile because the heat has had me down and out. Of course, my migraines are back in full force. It seems like there is no relief for me in the migraine situation. Well, my neuro did suggest Botox injections. It sounds silly to get Botox for a migraine. I’m sorry, it does. I’ll hope that something helps soon. These crippling migraines are a little too much right now.

I’m in the middle of my employment situation. My previous job I left a week ago, well, they were well informed that I had MS. They said they were cool with it. Anyway, they could help me, they would. Of course, I’m going to point out when I think it’s a tad bit warmer than it should be in the building. I can’t control my body temperature. They knew this. As an assistant manager quit the week before, I walk into work and it is blazing. Someone has the thermostat way high. I felt sick. I felt dizzy. I couldn’t handle it. I simply thought I was going to die. When I asked for the heat to be turned down, no one ever touched it. I suffered for almost three hours before the other person I was working with noticed I was sluggish and turned the AC on. Needless to say, I quit two days later. Right now, I’m enjoying some down time. Kinda. The migraines.

Today, we finally laid my uncle to rest. His ashes to rest. I still feel empty about this. 5 months later, I don’t know how to … feel. Empty seems appropriate. 13310633_10153129529159364_4889025942678562647_n13339483_10153129529094364_5536415203061480594_n (1)13335555_10153129528984364_324781674203741895_n13315273_10153129529269364_3328635463381753577_n

After this…I came home to find out a friend I met while volunteering at The Salvation Army passed away from his heart condition today. He was 23. Due to get married in 2 weeks and was going to be put on the heart transplant list in 17 days.

It is another reminder that life is short.

Cherish everything.

Tomorrow isn’t promised.

Sympathy… I Don’t Need It.

Whenever someone finds out I have MS, they act like I’m dying. Like it’s the worst news I’ve ever been given. Of course, I automatically want to punch said person(s) in the throat. Why?

Because I am left the rest of the day feeling self-conscious about myself. Whenever I get this sympathy,  I become uncomfortable with my diagnosis.

Note to you healthy people: Don’t do this to MS folks. Don’t.

We already have our issues with our bodies every day and we don’t need your sympathy to where we are even more aware of our issues. I don’t need to feel like there’s something “tragically” wrong with me. There isn’t. Outside of this disease, I’m quite okay. Fine, actually. I’m not depressed. I’m not upset anymore that I have RRMS, I’m quite content with it. It’s the hand I got dealt.

So please, when you find out my diagnosis, don’t give me that look and give me your “worst news” voice. Smile and wish me luck or ask me about my journey. Or please, change the topic. Or keep walking.

My Adventure

My sister and friend (plus some kids) decided we all needed to have a hiking adventure yesterday. Me? Well, I was kind of leery about it. My experience with the Copaxone hasn’t been that great. I ended up with an Upper Respiratory Infection and tonsillitis. I was talked into the hiking adventure, however. Giving the benefit of doubt, I joined.

It couldn’t be that bad, right?

Right????

No, really, it wasn’t that bad. The hiking trail was beautiful. I do mean BEAUTIFUL.

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Then there was this waterfall…20160518_202445

….which my friend’s daughter later fell down and went with later. (Literally. She fell down the waterfall) and my sister cleverly yells “Don’t go chasing waterfalls..”

and then…

I’m proud of this one. I pushed myself to climb a cliff and finish the trail. Which I did.

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People may argue limits and boundaries with this disease… and I will argue one more time back. This disease is NOT and WILL NOT define who I’m going to be. I will continue to be who I’ve always been. A stubborn & determined person. I will always be that person. I may have MS… it does not have me.

Copaxone: Day 1

Yesterday was my first day on Copaxone.

I know most of you are reading this and are thinking “Been there.”

Well, I haven’t, because I was taking another drug. It was a hassle to get this one. Not just from my insurance company-from the pharmacy as well.

Anyway, I’m taking 40 mg of this drug and here I am, at work in the bathroom, trying to figure out how to work the auto-injector. I’m going to say this right now, What the fuck is the auto-injector for? I can give myself an injection. It’s not that big of a deal. Besides, the auto-injector looks like something someone is going to stick up their vag to either 1. orgasm themselves or 2. impregnate themselves. (Even my cousin thought this is what it was for).

Immediately after injecting myself, I prepare for the “heart attack” like chest pains my neuro matter of factly told me I’d face. No, no chest pains. However, I tasted pennies. For two hours.

Is this normal?

My sister came to my job and says “I’m wondering if the pharmacy finally delivered on your meds?” I told her I tasted pennies haha. She said she figured it was normal. I don’t care who you are, tasting any element of metal in your mouth– it’s not normal.

Anyway, as the night wore on, I felt a tad bit better. That was until I woke up this morning with a blinding migraine.

Copaxone hangover, I assume?

Well, I’m hoping this drug can do me some good. I will not be put on Tysabri. EVER. So if this drug or the next one doesn’t work… welp.. it is what it is.

What side effects did you experience with Copaxone?

Red Wine Cures…

Not a damn thing.

I went into a few glasses of red wine thinking it could cure at least some of the thoughts  I have weighing on my mind right now.

The RRMS…

Being into a friend who I thought was into me back.. seriously who leads someone on when you’re in your late 20s???? I guess that’s still a thing after all. Who knew.

Glass three…

I felt I was living Taylor Swift’s former life and felt like writing a hit song.

Glass four…

I hated my life.

Glass five…

I’m realizing glasses 1-4 might’ve been a mistake. I don’t drink often & not nearly enough.wine-red-yum

Looking Back

I know almost every one of my posts are about Multiple Sclerosis and how it’s changed my life. A year ago, I would’ve never told anyone I knew or associated with I had this disease.I didn’t want anyone to treat me differently and I sure didn’t want anyone to notice that I was different.

However, around the time I was rediagnosed and going through the things I was going through; once I opened up about having RRMS, I didn’t look back. I don’t know if it was the point I was 30, going through a lot of stress and depression that finally made me open up- or if it was the fact I was tired of being alone and fighting this disease.

I lost a good friend. I’m still not sure what his problem was or is. Maybe he didn’t want to think of me any differently; hell, for all I know, we were never friends to begin with. Which is a whole factor that still makes me question a lot of things since I was 16… but now is not the time to get into it. Sometimes I wonder if he thinks I may be fighting a death sentence and he doesn’t know how to deal with it. What I do know is I’m done dwelling on this. Sure, it hurt me, but I’m adult. Not the 16-year old who would’ve handled this a lot differently.

These past few months have been the worst for me with fighting this disease. When my uncle passed away a few days before Christmas this year- all of the emotions and grief I went through made no sense. Nothing made sense. And when other family members were aware of my disease… the only thought in my head I kept hearing was “I don’t care. I don’t care.” The loss of my mom’s brother (the second one) was devastating. It was a blow I was unprepared for. I wanted to give up on everything. And after his wake- my life stopped making sense. Since his death, I know that I have to fight this battle. I have to. Today, my grandma brought up laying his ashes to rest next week– and this became a reality for me. My Uncle Bryan never is coming back. It still hurts.

The only thing I have gathered from this grief is that there are people who come into your life and you spend your time trying to figure out why this one person came to you— then you realize, it’s just God’s way of trying to make you feel better. The person I’m speaking of came into my and my sister’s life a few days after my uncle passed; I’ll be honest, this person is simply irreplaceable. Maybe my Uncle Bryan sent him to us– cause he knew how special this one person was… I’m not sure. What I do know, is I’m forever grateful.

Since I’ve been open and honest this past year about my RRMS; I’ve met some amazingly awesome people in the MS community I can never thank enough for being a support. Some of them are here on WordPress; some I’ve met on Twitter and Tumblr. Others are just people who’ve come into my life.

For that– I’m eternally grateful.