Hi!!!!

Hey guys!

It’s been awhile since I’ve posted, like, a long while. I hope all is good out there in the WordPress world!

As for me, well, I wish I could say the same.

I’ve been gone from the blogging life because I’ve let myself become one of those crazy workaholic people. It distracts from the other things going on in life. It really does. Like my 5 year old niece being in kidney failure. She’s getting dialysis 3 times a week. She also needs a kidney transplant. So, yeah, it distracts. Don’t worry though. My niece is doing well with everything that is going on with her and she knows what is going on.

How is everyone??? Healthy, I hope!

The World of Me…

I haven’t updated this in awhile because the heat has had me down and out. Of course, my migraines are back in full force. It seems like there is no relief for me in the migraine situation. Well, my neuro did suggest Botox injections. It sounds silly to get Botox for a migraine. I’m sorry, it does. I’ll hope that something helps soon. These crippling migraines are a little too much right now.

I’m in the middle of my employment situation. My previous job I left a week ago, well, they were well informed that I had MS. They said they were cool with it. Anyway, they could help me, they would. Of course, I’m going to point out when I think it’s a tad bit warmer than it should be in the building. I can’t control my body temperature. They knew this. As an assistant manager quit the week before, I walk into work and it is blazing. Someone has the thermostat way high. I felt sick. I felt dizzy. I couldn’t handle it. I simply thought I was going to die. When I asked for the heat to be turned down, no one ever touched it. I suffered for almost three hours before the other person I was working with noticed I was sluggish and turned the AC on. Needless to say, I quit two days later. Right now, I’m enjoying some down time. Kinda. The migraines.

Today, we finally laid my uncle to rest. His ashes to rest. I still feel empty about this. 5 months later, I don’t know how to … feel. Empty seems appropriate. 13310633_10153129529159364_4889025942678562647_n13339483_10153129529094364_5536415203061480594_n (1)13335555_10153129528984364_324781674203741895_n13315273_10153129529269364_3328635463381753577_n

After this…I came home to find out a friend I met while volunteering at The Salvation Army passed away from his heart condition today. He was 23. Due to get married in 2 weeks and was going to be put on the heart transplant list in 17 days.

It is another reminder that life is short.

Cherish everything.

Tomorrow isn’t promised.

One Lovely Blog Award

Let me start by thanking MSnuButterflies for nominating me for this. It’s kind of flattering to think one of my fellow bloggers gave me this honor when I’ve only had my blog up a short time. So, thank you again. (Please stop by her blog for awesome reads about laughs, life, and of course, MS).

Seven things about me:

  1. I love everything about there is about photography. I’m rarely seen without a camera in my hand.
  2. I’m a die-hard Steelers fan.
  3. It’s a well-known fact with everyone I know and now I’m sharing with you that I wish Channing Tatum would fall off a cliff somewhere. I can’t stand him.
  4. My kryptonite is tequila.
  5. I swear Roger the Alien from American Dad is my real brother. (Or sister???)
  6. I’m passionate about helping the youth in my community.
  7. I frequently volunteer in homeless shelters in my community

Please check out the 10 blogs I have nominated. I found it really hard to narrow it down to 10. There are so many wonderful and inspiring blogs. I encourage you to visit all of these wonderful blogs.

  1. LivingIncurably
  2. Being Lydia
  3. Mini2z
  4. As I Live & Breathe
  5. Personally Me Blog
  6. Indisposed and Undiagnosed
  7. Butterfly Sand
  8. Pain Pals
  9. Subjunctive Collapse
  10. Two Rooms Plus Utilities

If you choose to accept my nomination for “One Lovely Blog” award please follow these rules.

Award rules are:

1. Thank the person that has nominated you & include a link to their blog.

2. Nominate at least 10 blogs of your choice.

3. Link your nominees and let them know of your nomination.

4. Share seven different things about yourself.

 

My Adventure

My sister and friend (plus some kids) decided we all needed to have a hiking adventure yesterday. Me? Well, I was kind of leery about it. My experience with the Copaxone hasn’t been that great. I ended up with an Upper Respiratory Infection and tonsillitis. I was talked into the hiking adventure, however. Giving the benefit of doubt, I joined.

It couldn’t be that bad, right?

Right????

No, really, it wasn’t that bad. The hiking trail was beautiful. I do mean BEAUTIFUL.

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Then there was this waterfall…20160518_202445

….which my friend’s daughter later fell down and went with later. (Literally. She fell down the waterfall) and my sister cleverly yells “Don’t go chasing waterfalls..”

and then…

I’m proud of this one. I pushed myself to climb a cliff and finish the trail. Which I did.

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People may argue limits and boundaries with this disease… and I will argue one more time back. This disease is NOT and WILL NOT define who I’m going to be. I will continue to be who I’ve always been. A stubborn & determined person. I will always be that person. I may have MS… it does not have me.

Living a “Normal” Life

Before I came down with symptoms in 2006-

I was 22.

I loved playing with my toddler nephews, playing soccer, going on crazy activities with my family. Things were pretty “normal”. Nothing seemed out of the ordinary.

Now at 31–

With my diagnosis, it’s clear that everything has changed. No matter how hard I try not to let RRMS take control of me- I know I may not win. No matter if I believe I am Batman (and I do believe this… 24/7), my reality is that I don’t have a normal life.

My nephews, who are now pre-teens, are well aware that if its 92 outside; I can’t be outside. They know if I’m asleep on the couch at 2:30 in the afternoon, it’s fine. They believe it’s normal. They don’t understand the depression and pain, but they know this is who I am.

What is normal for us may not suit others. I’ve lost friends and I have no idea why. It makes me wonder if they were even my friends to begin with. I sometimes believe they don’t know how to talk to  me anymore- but that isn’t a reason to abandon someone you called a friend.

Time to adapt to the “new” normal.